POS1594-HPR A REGIONAL MULTICENTRE REVIEW OF THE DELAY TO DIAGNOSIS IN PATIENTS WITH AXIAL SPONDYLOARTHRITS- HOW WELL ARE WE DOING? RESULTS FROM THE SCAN GROUP (UK)
نویسندگان
چکیده
Background Due to the insidious onset and non-specific nature of axial spondyloarthritis (AxSpA), there is often a significant delay diagnosis. The average diagnosis in UK 8.5 years [1] . This associated with several adverse sequalae including poor disease-related quality life worse overall health outomes [2,3] In addition, are substantial health-economic costs this. Recent modelling data UK, commissioned by National Axial Spondylarthritis Society (NASS), demonstrated financial cost this be £196,000 (221,000 Euros) per person affected There focus on reducing diagnostic for patients AxSpA. SCAN (South Central Network) network NHS (National Health Service) Rheumatology departments hospitals across south-central UK. group comprises of; doctors, nurses physiotherapists. has working interest service development. Objectives carried out evaluation establish AxSpA our region. Data was gathered from total 7 within We also aimed assess degree variability different hospitals. baseline will used support potential implementation development initiatives, which turn, aim ultimately reduce Methods Retrospective patient collected area. 5-10 sequential cases newly diagnosed at each hospital. A 65 were included dataset. on; date symptom onset, diagnosis, age gender. Results Chart 1 summarises main findings 1. Based representative sample region, (mean) area 4.6 years. new data. 37 old 70% male. range month 30 observed between may related size, differences local referral systems or reflective areas where primary care education been undertaken. Whilst acknowledging relatively modest size sample, regional multicentre dataset allowed us importantly what valuable information provide planning further improvements. Conclusion Our suggests region significantly shorter than national (4.6 versus years). However, remains unacceptably long likely wider detrimental socio-economic impact. consider introducing changes processes ( e.g., an agreed single proforma education). replicate any successful arrangements place those shortest re-evaluate 12-36 months we optimistic demonstrating progress References https://nass.co.uk/news/cost-of-delayed-diagnosis [2]Doward LC, Spoorenberg A, Cook SA, Whalley D, Helliwell PS, Kay LJ, McKenna SP, Tennant van der Heijde Chamberlain MA. Development ASQoL: instrument specific ankylosing spondylitis. Ann Rheum Dis. 2003;62:20–26. [3]Yi E, Ahuja Rajput T, George AT, Park Y. Clinical, economic, humanistic burden delayed spondyloarthritis: systematic review. Rheumatol Ther. 2020;7:65–87. Acknowledgements abstract produced submitted behalf entire group. Disclosure Interests Gurdeep Dulay Speakers bureau: Previous unrelated paid speaker fees/advisory board fees for: Roche, Chugai, Lilly, Sandoz, Thornton-Ross, Amgen, UCB, Abbvie, Gilead, Janssen., Catherine Boys: None declared, Antoni Chan: Aisling Coy: Mary Devin: Leslie Goh: Arran McDougall: Kathryn Rigler: Jacqui Tomkins: Dinny Wallis: Emma Williams: declared.
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ژورنال
عنوان ژورنال: Annals of the Rheumatic Diseases
سال: 2023
ISSN: ['1468-2060', '0003-4967']
DOI: https://doi.org/10.1136/annrheumdis-2023-eular.1064